Larry, Living with Hpp

REAL PATIENT STORIES.
REAL SUPPORT.

Explore a collection of helpful videos about living with hypophosphatasia (HPP) and getting started on STRENSIQ® (asfotase alfa).


From understanding your treatment to hearing from real patients and caregivers, plus guidance on staying on track with support from OneSource™ case managers—our video library is here to support your journey every step of the way.

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REAL PATIENT STORIES

Patients and caregivers share the signs, struggles, and steps to an HPP diagnosis.

 

Patient Story—Journey to HPP Diagnosis

Hear from both those living with HPP and their caregivers discuss the journey to a diagnosis.

 

Patient Story—Starting HPP Treatment

Listen to HPP Patient STAR Ambassadors share their experiences starting treatment with STRENSIQ.

 

Patient Story—Living With HPP

Learn more from real patients about living with HPP and taking STRENSIQ.

 

Patient Story—Life with STRENSIQ: Larry & His Son

Larry, living with HPP, describes his journey to diagnosis, his son’s experience with HPP, and how STRENSIQ helped them get back to the things they love.

Have questions? An HPP STAR is ready to share their experience with you. Talk to a Peer Today

GETTING STARTED ON STRENSIQ (INJECTION VIDEOS)

Get step-by-step guidance on preparing and administering your STRENSIQ injections. These videos are here to help you feel comfortable and confident as you begin treatment.

Learn more about how to use STRENSIQ.

 

STRENSIQ Injection Courage

Hear from HPP Patient STAR Ambassadors about overcoming fear of injection.

 

STRENSIQ Injection Tutorial

Learn from HPP Patient STAR Ambassadors on the proper way to administer STRENSIQ.

ONESOURCE TESTIMONIALS

Patients share how OneSource case managers provide support with everyday challenges and resources to help patients navigate life with confidence.

For more information, access the Patient Portal and Enroll Today.

 

How OneSource Can Help—Carol, Living With HPP, and Her Case Manager, Deana

Hear from Carol as she discusses how Deana, her OneSource Case Manager, has supported her through the insurance process, introduced her to helpful resources, and answered questions about HPP and STRENSIQ.

 

Traveling With STRENSIQ—How OneSource Helped Jessica & Pete Maintain Their Lifestyle

Listen to Jessica & Pete as they share how Diana, their OneSource Case Manager, has helped them navigate traveling with STRENSIQ so they can continue to do what they love.

 

OneSource Can Feel Like Family—Kara & Quinn’s Bond With Their OneSource Case Manager, Betsy

Get to know Kara, a mother and caregiver to son, Quinn, living with HPP, on how Betsy, their OneSource Case Manager, has provided emotional support as well as helpful information and resources throughout Quinn’s journey with STRENSIQ.

 

Support From OneSource—3 OneSource Case Managers Share How They Help

Find support from OneSource: 3 OneSource Case Managers share how they help. Hear from OneSource Case Managers Betsy, Deana, and Diana as they discuss the many ways OneSource can support patients throughout their journey with HPP and STRENSIQ.

STRENSIQ FAQs

Have questions about life with HPP or getting started on treatment? These videos answer common questions about injections, traveling with STRENSIQ, talking to others about HPP, making treatment decisions, and more—so you feel informed and supported along your journey.

 

STRENSIQ FAQ—Courage

Hear how HPP STAR Ambassadors learned to inject STRENSIQ with confidence.

 

STRENSIQ FAQ—Traveling with STRENSIQ

Watch our Traveling with STRENSIQ FAQ video.

 

STRENSIQ FAQ—Talking about HPP

Get tips for starting the conversation about HPP.

 

STRENSIQ FAQ—Choosing STRENSIQ

Listen to HPP STAR Ambassadors on their decision to get started with STRENSIQ.

 

STRENSIQ FAQ—HPP Awareness

HPP awareness is where it starts. Find out more about the importance of sharing knowledge with others.

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IMPORTANT SAFETY
INFORMATION INCLUDING BOXED
WARNING & INDICATION

IMPORTANT SAFETY INFORMATION

What is the most important information I should know about STRENSIQ® (asfotase alfa)?
STRENSIQ may cause serious side effects, including severe allergic (hypersensitivity) reactions. Allergic reactions are common with STRENSIQ treatment and can be severe and life-threatening. Severe allergic reactions have happened in some people within minutes after receiving STRENSIQ and more than 1 year after starting treatment with STRENSIQ. Stop using STRENSIQ and go to the nearest hospital emergency room right away if you or your loved one get any of the following signs and symptoms of a serious allergic reaction:

  • difficulty breathing
  • choking sensation
  • swelling of your eyes, lips, or tongue
  • dizziness
  • nausea or vomiting
  • fever
  • headache
  • sweating
  • feeling irritable
  • chills
  • skin redness
  • skin rash or hives
  • itching or numbness of the
    tongue, lips, cheeks, or gums

What are the other possible side effects of STRENSIQ?
STRENSIQ may cause other serious side effects, including:

  • skin thickening or pits at the injection site (lipodystrophy). Lipodystrophy is common and has happened after several months in people treated with STRENSIQ.
  • calcium build-up in the eyes and kidneys. People with HPP are at increased risk for developing calcium build-up in the body. Calcium build-up in the eyes and kidneys has happened and is a common side effect of STRENSIQ. Calcium build-up in the eyes and kidneys may also happen in people with HPP who are not treated with STRENSIQ. Your healthcare provider should check your eyes and kidneys before and during treatment with STRENSIQ.
  • immune-related effects. You may develop antibodies during treatment that may decrease how well STRENSIQ works. Tell your healthcare provider right away if you get worsening symptoms of HPP including: difficulty breathing, difficulty walking, feeling tired, bone pain, stiff joints, or loss of appetite.

The most common side effects of STRENSIQ include local skin injection site reactions such as skin redness, bruising, color change, pain, itching, hardening of the skin (induration), swelling, and bumps. These are not all the possible side effects of STRENSIQ. For more information, ask your healthcare provider or pharmacist. Call your healthcare provider for medical advice about side effects.

You will begin receiving STRENSIQ under the supervision of a healthcare provider. Tell your healthcare provider about all your medical conditions, including if
you:

  • have had an allergic reaction to STRENSIQ.
  • are pregnant or plan to become pregnant. It is not known if STRENSIQ will harm your unborn baby.
  • are breastfeeding or plan to breastfeed. It is not known if STRENSIQ passes into your breast milk. Talk to your healthcare provider about the best way to feed your baby if you use STRENSIQ.

Tell your healthcare provider about all the medicines you take,
including prescription and over-the-counter medicines, vitamins, and herbal supplements.

There is a registry for people who use STRENSIQ. The purpose of this registry is to collect information about HPP and about what happens when you use STRENSIQ for a long time. For more information about this registry, talk with your healthcare provider or go to www.hppregistry.com.

To report SUSPECTED SIDE EFFECTS, contact Alexion
Pharmaceuticals, Inc. at
1-844-259-6783 or FDA at 1-800-FDA-1088 or www.fda.gov/
medwatch.

INDICATION

What is STRENSIQ?
STRENSIQ® (asfotase alfa) is a prescription medicine used to treat people with perinatal, infantile, and juvenile onset hypophosphatasia (HPP).

Please see full Prescribing Information and Patient Information for STRENSIQ (asfotase alfa), including Boxed WARNING regarding severe allergic (hypersensitivity) reactions.

IMPORTANT SAFETY
INFORMATION INCLUDING BOXED
WARNING & INDICATION

IMPORTANT SAFETY INFORMATION

What is the most important information I should know about STRENSIQ® (asfotase alfa)?
STRENSIQ may cause serious side effects, including severe allergic (hypersensitivity) reactions. Allergic reactions are common with STRENSIQ treatment and can be severe and life-threatening. Severe allergic reactions have happened in some people within minutes after receiving STRENSIQ and more than 1 year after starting treatment with STRENSIQ. Stop using STRENSIQ and go to the nearest hospital emergency room right away if you or your loved one get any of the following signs and symptoms of a serious allergic reaction:

  • difficulty breathing
  • choking sensation
  • swelling of your eyes, lips, or tongue
  • dizziness
  • nausea or vomiting
  • fever
  • headache
  • sweating
  • feeling irritable
  • chills
  • skin redness
  • skin rash or hives
  • itching or numbness of the
    tongue, lips, cheeks, or gums

What are the other possible side effects of STRENSIQ?
STRENSIQ may cause other serious side effects, including:

  • skin thickening or pits at the injection site (lipodystrophy). Lipodystrophy is common and has happened after several months in people treated with STRENSIQ.
  • calcium build-up in the eyes and kidneys. People with HPP are at increased risk for developing calcium build-up in the body. Calcium build-up in the eyes and kidneys has happened and is a common side effect of STRENSIQ. Calcium build-up in the eyes and kidneys may also happen in people with HPP who are not treated with STRENSIQ. Your healthcare provider should check your eyes and kidneys before and during treatment with STRENSIQ.
  • immune-related effects. You may develop antibodies during treatment that may decrease how well STRENSIQ works. Tell your healthcare provider right away if you get worsening symptoms of HPP including: difficulty breathing, difficulty walking, feeling tired, bone pain, stiff joints, or loss of appetite.

The most common side effects of STRENSIQ include local skin injection site reactions such as skin redness, bruising, color change, pain, itching, hardening of the skin (induration), swelling, and bumps. These are not all the possible side effects of STRENSIQ. For more information, ask your healthcare provider or pharmacist. Call your healthcare provider for medical advice about side effects.

You will begin receiving STRENSIQ under the supervision of a healthcare provider. Tell your healthcare provider about all your medical conditions, including if
you:

  • have had an allergic reaction to STRENSIQ.
  • are pregnant or plan to become pregnant. It is not known if STRENSIQ will harm your unborn baby.
  • are breastfeeding or plan to breastfeed. It is not known if STRENSIQ passes into your breast milk. Talk to your healthcare provider about the best way to feed your baby if you use STRENSIQ.

Tell your healthcare provider about all the medicines you take,
including prescription and over-the-counter medicines, vitamins, and herbal supplements.

There is a registry for people who use STRENSIQ. The purpose of this registry is to collect information about HPP and about what happens when you use STRENSIQ for a long time. For more information about this registry, talk with your healthcare provider or go to www.hppregistry.com.

To report SUSPECTED SIDE EFFECTS, contact Alexion
Pharmaceuticals, Inc. at
1-844-259-6783 or FDA at 1-800-FDA-1088 or www.fda.gov/
medwatch.

INDICATION

What is STRENSIQ?
STRENSIQ® (asfotase alfa) is a prescription medicine used to treat people with perinatal, infantile, and juvenile onset hypophosphatasia (HPP).

Please see full Prescribing Information and Patient Information for STRENSIQ (asfotase alfa), including Boxed WARNING regarding severe allergic (hypersensitivity) reactions.